Fundación Ifarma

Fundación Ifarma (IFARMA) is a non-profit organization doing research, consultancy, and advocacy work on access to medicines. Ifarma participates in international networks working on public health policies directed to increase access to essential medicines and improve their rational use through research and evidence-based advocacy. Since its creation, in 2001, Ifarma has developed substantial collaborations with several civil society groups in Latin America region. Ifarma has pioneered initiatives advocating for the declaration of public interest on essential medicines by the Colombian government, and among them, on the latest generation of Hepatitis C treatment.

Key result:

• Inclusion of Colombia in the list of countries participating in the WHO Regional Office for the Americas (PAHO) group purchase of direct-acting antivirals

The Delhi Network of Positive People (DNP+)

The Delhi Network of Positive People (DNP+) is a network of people living with HIV. Established in 2000 DNP+ strives for the day when all who need treatment receive it and no one would suffer or die for lack of access to medicines. DNP+’s core work is service delivery, treatment literacy, community empowerment and advocating for access to medicines. DNP+ campaign against antiretroviral stock-outs, against free trade agreements that threaten generic access and file patent oppositions on HIV and HCV medicines. DNP+ has been dedicatedly working on providing absolutely vital services for people living with HIV/AIDS and HCV in Delhi. When DNP+ is not holding the government accountable for fulfilling its responsibility to provide treatment, it is working with the government to provide crucial logistical help.

Key results:

• Care for homeless drug users, who were denied care by the state until they had proper documentation
• Expansion of the number of hospitals able to diagnose and treat HCV in Delhi
• Integration of HCV services in Tihar Jail, Delhi's main jail

Malaysian AIDS Council (MAC) and Positive Malaysian Treatment Advocacy and Access Group (MTAAG+)

The Malaysian AIDS Council (MAC) was established in 1992 to serve as an umbrella organization to support and coordinate the efforts of non-governmental and other organizations working on HIV/AIDS issues in Malaysia. MAC works in partnership with government agencies, the private sector, and international organizations to ensure a committed and effective response to HIV/AIDS and HCV- related issues in Malaysia. MAC maintains privileged relations with the government and the main Malaysian policy makers since its beginnings. It gained national and regional legitimacies not only concerning HIV and co-infections but also, through its work on human rights, access to medicines and trade agreements.

Positive Malaysian Treatment Advocacy and Access Group (MTAAG+) works with people living with HIV/AIDS at the national level. The priorities for MTAAG+ are the national implementation of TRIPS flexibilities in law and practice, and the prevention of IP provisions in bilateral and multilateral trade agreements that are against public health, in particular access to affordable medicines. MTAAG+ aims to mobilize the PLHIV and PLHCV Community to take ownership of their lives and circumstances in order to develop a common agenda and a national network for better access to ARV and DAAs treatment.

Résultats clés :

• Obtention d’une licence d'utilisation gouvernementale du sofosbuvir, un médicament primordial pour le traitement du VHC, en Malaisie.
• Lancement des plans nationaux sur le VHC en Malaisie et en Thaïlande, l’amélioration du programme en Indonésie et l’expansion du réseau des hôpitaux qui traitent le VHC en Inde.
• Augmentation du budget consacré au VHC en Indonésie et en Malaisie qui a permis l’approvisionnement en AAD.

Association de Lutte contre le Sida (ALCS)

Association de Lutte contre le Sida (ALCS) is the first and largest non-governmental organization (NGO) and community-based organization (CBO) in the Middle East and North Africa region fighting HIV and viral hepatitis. Founded in 1988, ALCS has been recognized withthe public utility status since 1993 and it is the main partner of the Ministry of Health in fighting HIV and the only NGO and CBO involved in HIV and viral hepatitis prevention, healthcare access, psychological and social support of people who live with HIV. ALCS has with more than 200 high-skilled volunteers and field workers and 100 employees. Besides being a founding member of Coalition PLUS, ALCS is a leading NGO on advocacy and research in the MENA region., Tit also has a community research department to reinforce its advocacy and to improve the HIV and viral hepatitis prevention, healthcare access and the respect of the rights of key populations.

Key result:

• Inclusion of Moroccan partners in the steering committee set up by the government to develop guidelines for the fight against hepatitis

Community Network for Empowerment (CoNE)

Community Network for Empowerment (CoNE) is a state-level network representing the CBOs of people who use drugs. It is contributing to the state health response related to drug use, including HIV and other blood borne viruses such as HCV, and also taking up at the state and national levels the issues and problems faced by people who use drugs, at the state and national levels. The network was established in 2011, with an affiliation of 11 CBOs, to promote and protect health and human rights of people who use drugs. Advocacy is the core task of the network, with focus on evidence-based advocacy for change on priorities identified by the people who use drugs. CoNE also acts via crisis intervention and exerts a watchdog role.

Key results:

• Adoption by the government of guidelines for HCV diagnosis and management developed by the project partners in Manipur and considered strategic for the implementation of Manipur's hepatitis elimination programme
• Training of health professionals and managers within NGOs working in the HIV field
• Contributing to improving the performance of the treatment programme in Manipur. Today, Manipurit is the second most effective programme in the country.

Fórum das ONG/Aids do Estado de São Paulo (FOAESP)

Fórum das ONG/Aids do Estado de São Paulo (FOAESP) is a groundbreaking and well-established umbrella organization, bringing together around 100 NGOs that work in the field of AIDS, human rights, and public health in the state of Sao Paulo. Founded in 1997, FOAESP advocates for better public health policies on AIDS, HCV, and STIs, the expansion of prevention and awareness of HIV and co-infections and the defense of the rights of people living with HIV. FOAESP advocacy initiatives target legislative, executive and judicial powers and are conducted at both state and federal levels. FOAESP also works towards strengthening and supporting member organizations via capacity building, training and mediation.

Key result:

• Creation of a cross-party parliamentary front to fight hepatitis, HIV and sexually transmitted infections in Brazil that works to influence parliamentary debate and drive legislation on these issues.

Therapeutics Research, Education, and AIDS Training in Asia (TREAT Asia) – Southeast Asia

Established in 2001, TREAT Asia (Therapeutics Research, Education, and AIDS Training in Asia) is a collaborative network of clinics, hospitals, research institutions, and civil society working to ensure the safe and effective delivery of HIV treatments to adults and children across the Asia-Pacific region through research and treatment, education on HIV/AIDS and viral hepatitis, community advocacy and policy.